This 2019 photo provided by The ALS Association shows Pat Quinn. Quinn, a co-founder of the viral ice bucket challenge, died Sunday, Nov. 22, 2020, at the age of 37. (Scott Kauffman/The ALS Association via AP)

This 2019 photo provided by The ALS Association shows Pat Quinn. Quinn, a co-founder of the viral ice bucket challenge, died Sunday, Nov. 22, 2020, at the age of 37. (Scott Kauffman/The ALS Association via AP)

Co-founder of viral ALS Ice Bucket Challenge dies at 37

Pat Quinn was diagnosed with Lou Gehrig’s disease, also known as amyotrophic lateral sclerosis, in 2013

A co-founder of the social media ALS ice bucket challenge, which has raised more than $200 million worldwide for Lou Gehrig’s disease research, died Sunday at the age of 37, according to the ALS Association.

Pat Quinn was diagnosed with Lou Gehrig’s disease, also known as amyotrophic lateral sclerosis, in 2013, a month after his 30th birthday, the organization said in a statement announcing his death.

“Pat fought ALS with positivity and bravery and inspired all around him,” the association said. “Those of us who knew him are devastated but grateful for all he did to advance the fight against ALS. … Our thoughts are with the Quinn family and all of his friends and supporters. Pat was loved by many of us within the ALS community and around the world.”

In 2014, Quinn saw the ice bucket challenge on the social media feed of professional golfer Chris Kennedy, who first dared his wife’s cousin Jeanette Senerchia to take a bucket of ice water, dump it over her head, post a video on social media and ask others to do the same or to make a donation to charity. Senerchia’s husband had ALS.

Quinn and co-founder Pete Frates, along with their teams of supporters, helped popularize the challenge. The ALS Association said Quinn “knew it was the key to raising ALS awareness,” calling it “the greatest social media campaign in history.” Frates, a former Boston College baseball player, died in December 2019 at the age of 34.

When the two picked it up, the phenomenon exploded, the organization said. Thousands of people participated in the viral trend, including celebrities, sports stars and politicians — even Donald Trump before his election and cartoon character Homer Simpson. Online videos were viewed millions of times.

“It dramatically accelerated the fight against ALS, leading to new research discoveries, expanded care for people living with ALS, and significant investment from the government in ALS research,” the organization’s statement said.

Lou Gehrig’s disease, named after the New York Yankees great who suffered from it — is also known as ALS or motor neuron disease. It is a progressive neurodegenerative disease that leads to paralysis due to the death of motor neurons in the spinal cord and brain. There is no known cure.

The organization added that Quinn continued to raise awareness and funds after popularizing the challenge. In 2015, the association honoured him, among others, as “ALS Heroes” — an award given to people living with the disease who have had a significant positive impact on the fight against it.

On the 5th anniversary of the challenge, Quinn, who was from Yonkers, New York, addressed a crowd in Boston.

“Nobody knew the Ice Bucket Challenge would become a worldwide phenomenon, but we united as one because that is what it takes to change a disease like ALS,” he said. “There are warriors all over the world unwilling to accept it as a death sentence. … We will never stop fighting together. I will not leave this Earth until I know the next person diagnosed with ALS has a real plan to live with this disease, not just die from it.”

The Associated Press

Like us on Facebook and follow us on Twitter.

Want to support local journalism? Make a donation here.

Just Posted

.
Princeton’s Spotlight wins two provincial awards for excellence

Publisher takes first place for investigative reporting

Princeton GSAR responds 24 hours a day, 365 days a year. In 2020 the crew was called out 34 times, and members spent 721 hours on calls, and 683 hours training. Photo Princeton GSAR Facebook
Teen missing in Manning Park found after 24 hours

Young man spends night on mountain and survives with just a few scrapes

The COVID-19 cases reported over the week of May 30 to June 5. (BC CDC)
South Okanagan sees second straight week of 17 new COVID-19 cases

Summerland, Keremeos and Princeton all recorded no new cases

The Regional District of Okanagan-Similkameen has hired a new FireSmart coordinator. (Black Press file photo)
FireSmart coordinator named for Regional District of Okanagan-Similkameen

Kerry Riess will provide assistance to mitigate potential wildfire hazards

The damages to the downtown park in Keremeos. One of the trees that was uprooted was a memorial tree with a plaque. (Submitted)
Memorial tree in Keremeos park uprooted by vandals

All of the trees in the small park were torn up and the statue was shifted

Dr. Albert de Villiers, chief medical health officer for the Interior Health Authority. (Contributed)
Black Press Media Weekly Roundup: Top headlines this week

Here’s a summary of this week’s biggest stories from the Okanagan-Shuswap

57-year-old Kathleen Richardson was discovered deceased in her home Wednesday, June 9, 2021. Her death is considered a homicide and connected to the slain brothers found on a Naramata forest road. (Submitted)
Naramata community in shock as condolences pour in for homicide victim Kathy Richardson

Richardson was well liked in the community, a volunteer firefighter with a home-based salon

British Columbia-Yukon Community News Association’s 2021 Ma Murray Awards were handed out during a virtual ceremony on Friday, June 10. (Screen grab)
Black Press Media winners take gold at B.C. and Yukon journalism awards

Publications received nods in dozens of categories

The RCMP are asking for assistance regarding the death of Kathleen Richardson of Naramata, pictured here. Her death is believed to be related to two homicides in Naramata in May. (RCMP)
Police identify South Okanagan homicide victim as 57-year-old Naramata woman

57-year-old Kathleen Richardson was discovered deceased in her home Wednesday

Fair-goers take a ride at the 120th annual Armstrong Interior Provincial Exhibition and Stampede Aug. 28-Sept. 1, 2019. (Katherine Peters - Morning Star)
Armstrong’s IPE not eligible for COVID-19 grant designed for major attractions

Shuswap MLA Greg Kyllo criticized the rigidity of the provincial program’s criteria

Two e-scooters parked on the sidewalk along Water Street in downtown Kelowna on Monday, May 3. Scooters parked on walkways are causing accessibility issues for some people with disabilities. (Michael Rodriguez/Capital News)
Kelowna General Hospital clinicians observe increase in e-scooter injuries

A report is set to go to city council next week on how the e-scooter pilot has gone thus far

Prime Minister Justin Trudeau greets campers while visiting McDougall, Ont. on Thursday, July 19, 2018. THE CANADIAN PRESS/Frank Gunn
71% of B.C. men say they’d prefer to go camping with Trudeau: survey

Most British Columbians with plans to go camping outdoors say they’d prefer to go with Trudeau or Shania Twain

Members of the Department of Fisheries and Oceans’ Marine Mammal Response Program rescued an adult humpback what that was entangled in commercial fishing gear in the waters off of Entrance Island on Thursday, June 10. (Photo courtesy Marine Mammal Response Program)
Rescuers free humpback ‘anchored’ down by prawn traps off Vancouver Island

Department of Fisheries and Oceans responders spend hours untangling whale

Chilliwack cocaine trafficker Clayton Eheler seen with a tiger somewhere in Asia in 2014. Eheler was sentenced to nine years jail in 2018, but was released on bail in October 2020 pending his appeal of conviction.(Facebook)
Director of civil forfeiture seeks $140,000 from Fraser Valley drug dealer’s father-in-law

Clayton Eheler’s father-in-law Ray Morrissey caught with money in Fort St. John by B.C.’s gang unit

Most Read